Список литературы и материалов

Существует много доступных источников информации по детской паллиативной помощи, некоторые из них были использованы в процессе подготовки данного модуля.

Литература

1. ACT (2011) ACT Basic Symptom Control in Paediatric Palliative Care: The Rainbows Children>s Hospice Guidelines.

2. Amery J (2009) Children’s Palliative Care in Africa. London, Oxford University Press. Downloadable from the ICPCN website.

3. Gwyther L, Merriman A, Mpanga Sebuyira L and Schietinger H (2006) A Clinical Guide to Supportive and Palliative Care for HIV and AIDS in Sub-Saharan Africa. Kampala, APCA. Downloadable from the FHSSA website.

4. Steinhauser KE, Clipp EC, McNeiIIy M, Christakis NA, McIntyre LM, Tulsky JA. In Serach of a Good Death: Onservations of Patients, Families and Providers. Ann Intern Med, 2000; 132(10) p825-832.

5. Kreicbergs U, Valdimarsdottir U, Onelov E, HenterJI, Steineck G. Talking about death with children who have severe malignant disease. N Engl J Med 2004; 351:1175.

6. Frederich MF, Artifical hydration and nutrition in the terminally ill. American Academy of Hospice and Palliative medicine; San Diego Volume 4,2002.

7. McDougaII RJ, Notini L. Overriding parents’ medical decisions for their children: a systematic review of normative literature. Journal Med Ethics doi:10.1136/medethics-2013-101446.

8. Help the Hospices (2008) Palliative care toolkit. Help the Hospices, London. Downloadable from the Help the Hospiceswebsite.

9. Ha сайтах организаций ICPCN и Together for short Lives вы также сможете найти много полезной информации.

Многие источники, перечисленные выше, были использованы при разработке данного курса.

Интернет-источники

1. Artificial Nutrition and Hydration: Beneficial or Harmful? American Hospice Foundation

http://www.americanhospice.org/articles-mainmenu-8/

caregiving-mainmenu-10/48-artificial-nutrition-and-hydration-

beneficial-or-harmful.

2. WMA Declaration ofVenice on Terminal Illness 2006 http://www.wma.net/en/30publications/10policies/i2/index.html.

3. PEPSI-COLAAide-Memoir:

http://pro.mountvernoncancernetwork.nhs.uk/assets/Uploads/

documents/PEPSI-COLA-Aide-Memoir-FINAL-DRAFT.pdf.

4. Care Pathway for Children with Cerebral Palsywww.bacdis.org.uk/ policy/documents/CarePathwayforCYPwithCerebralPalsy.doc.